Evolution of Eve | Rediscovering life then and exploring the now

Introduction video to the series. This will be a year-long project.

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Memory loss, scattered focus, inability to track time, and an ill-known stigmatized neurological disorder, plus PTSD symptoms, have erased or complicated recall of Eve’s first 37 years of life.

Now in her mid-40s, Eve is Autistic AF (born that way) and left with a brain that doesn’t include filters (she says fuck. a lot), likes to glitch and, after the memory wipe, created a new personhood. Eve is different to those who’ve known her from childhood. She is unknown even to herself and seeking to learn about her life from back then, and embracing life now.

This series focuses on self-discovery after the onset of severe mental illness, memory loss and permanent disability. It’s a different life and a worthy life.

Contact Eve | americanbadassactivists@gmail.com

Find Evolution of Eve posts here.
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Also, hanging out here
Facebook : https://www.facebook.com/genevievechoatehinson
Twitter : https://twitter.com/BadassActivist
Instagram : https://www.instagram.com/badassactivist/

Resource links

National Alliance for Mental Illness (NAMI) : https://www.nami.org/

Autistic Self Advocacy Network (ASAN): http://autisticadvocacy.org/

FNDHope: https://fndhope.org/

My parents never could have filled out those evaluations

Aspie Under Your Radar

family with parents in focus and kids in blur

So, this showed up on Twitter a few times in the past days:

Sex Differences in Parent-Reported Executive Functioning and Adaptive Behavior in Children and Young Adults with Autism Spectrum Disorder

Emily I. White, Gregory L. Wallace, Julia Bascom, Anna C. Armour, Kelly Register-Brown, Haroon S. Popal, Allison B. Ratto, Alex Martin, and Lauren Kenworthy

This study is the largest to date examining executive function and adaptive skills in females with autism spectrum disorder (ASD). Its primary aim was to utilize parent ratings of real-world executive functioning and adaptive behavior to better understand whether females with ASD differ from males with ASD in these areas of everyday functioning. We compared 79 females with ASD to 158 males with ASD (ages 7–18) who were statistically matched on age, IQ, and level of ADHD or ASD traits.  . . .  Females were rated by parents as having greater problems with executive function…

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Doing a better job of working with doctors

Aspie Under Your Radar

germ I don’t always know what’s going on with me – so I need to change the way I handle my working relationship with my doctor(s)

Since looking at the visual of my curved spine, I’ve noticed just how “lop-sided” I can be. I seem to lean to the left which is how my spine is abnormally curved. And my left side is a lot more tight than my right side. I suppose it makes sense. If I’ve been skewed to the left for however many years, then it stands to reason that my muscles on that side would be at least a little shortened over time.

Exactly how long things have been this way, I’m not sure. I was told that I had scoliosis, about 20 years ago, but the provider who talked to me didn’t give me much information. She just said, “scoliosis” and moved on. Literally. Just one…

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Counting On Medicaid To Avoid Life In A Nursing Home? That’s Now Up To Congress.

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Ten years ago, a driver ran a stop sign as Jim McIlroy rode into the intersection on his motorcycle. Serious injuries left McIlroy paralyzed from the chest down. But, after spending some time in a nursing home, he returned to his home near Bethel, Maine.

McIlroy does most of his own cooking since Maine’s Medicaid program paid for a stovetop that he can roll his wheelchair underneath to reach the food-prep area. His new kitchen sink has the same feature. Wheelchair-friendly wood flooring has replaced McIlroy’s wall-to-wall carpeting.

The alterations plus a personal care aide — all paid for by Medicaid  — enable McIlroy to stay in his house that he and his wife, who has since died, “worked really hard to own,” he said. The arrangement also saves Medicaid roughly two-thirds of what it would cost if he lived in a nursing home. Continue reading Counting On Medicaid To Avoid Life In A Nursing Home? That’s Now Up To Congress.

Evolution of Eve | A Mother of a Birth Story [pt 3]: Antepartum

At 30-weeks pregnant I was being admitted to the high-risk antepartum unit. The trip to the hospital was an exhaustive blur. Forget preeclampsia, I needed sleep.

(By Eve Hinson, originally published Summer/Fall 2009 | Currently there isn’t a part 2 available. If it’s found, will post in the future.)

“Where do we check in?” said Jim after he braked for a red light.

10446236_10152298716322823_857629517119240364_o“I don’t know. The emergency room?” We didn’t get a tour of this hospital – or any maternity ward for that matter. “That’s what the Clovis hospital had us do.”  We’d gone there when I was 27-weeks pregnant for tests.

Jim headed that way. Well, at least in the direction we thought it was. The street the entrance used to be located had a multi-story building plopped in the middle. I surmised it must be the new trauma wing.

“Well, where do we go now?”

“I don’t know.” The last time I was here was on Jared’s birthday 16 years earlier. So much had changed. Maybe we could go home, grab a few hours of sleep and then come back.

“Just drive around it until there’s a sign.”

Sigh. It was better to just get this over with. Besides, if we went home I wouldn’t get any rest. Continue reading Evolution of Eve | A Mother of a Birth Story [pt 3]: Antepartum

McCain Votes No, Derails ‘Skinny Repeal’ In Marathon Session

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WASHINGTON — Sen. John McCain (R-Ariz.), who interrupted brain cancer treatment to return to Capitol Hill and advance the health law repeal, cast the dramatic and decisive “no” vote in the early morning hours that upended the Republican effort to repeal the Affordable Care Act.

The Senate struggled late into the night to craft and then vote on a “skinny bill” for health care reform but was defeated in a 51-49 vote that prompted gasps in the chamber. McCain’s vote was unexpected and ends — for now — the Republican Party’s effort to kill Obamacare. Continue reading McCain Votes No, Derails ‘Skinny Repeal’ In Marathon Session

Medicaid Proves A Lifeline For Clients Of Crisis Pregnancy Centers

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Click to listen to interview. 

When Taylor Merendo moved to Bloomington, Ind., nearly two years ago, fleeing an abusive marriage, she needed help.

“I was six months pregnant and, at that point in time, I really didn’t have a stable place to live,” Merendo said.

That’s where the Hannah Center in Bloomington stepped in. It’s what’s known as a crisis pregnancy center, where women are counseled against abortion and often get support after their babies are born.

Many low-income women come in believing they need to have an abortion, says Executive Director Tina Tuley-Lampke, and she tries to persuade them otherwise.

“Because for many women it’s not truly a choice when they feel like they don’t have any other options,” she said. Continue reading Medicaid Proves A Lifeline For Clients Of Crisis Pregnancy Centers

Whistleblowers: United Healthcare Hid Complaints About Medicare Advantage

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United Healthcare Services Inc., which runs the nation’s largest private Medicare Advantage insurance plan, concealed hundreds of complaints of enrollment fraud and other misconduct from federal officials as part of a scheme to collect bonus payments it didn’t deserve, a newly unsealed whistleblower lawsuit alleges.

The suit, filed by United Healthcare sales agents in Wisconsin, accuses the giant insurer of keeping a “dual set of books” to hide serious complaints about its services and of being “intentionally ineffective” at investigating misconduct by its sales staff. A federal judge unsealed the lawsuit, first filed in October 2016, on Tuesday. Continue reading Whistleblowers: United Healthcare Hid Complaints About Medicare Advantage

Leap Of Faith: Will Health Care Ministries Cover Your Costs?

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Martin Estacio was shelling out $800 per month for a health plan that didn’t fit his two-state lifestyle.

The retired San Bernardino firefighter lives between Oklahoma and California. But his health insurance policy, purchased in Oklahoma, didn’t cover non-emergency care outside the state.

So Estacio dropped his plan this month and took a leap of faith. He joined Christian Healthcare Ministries (CHM), an alternative to health insurance that offers a religious approach to covering medical bills. Continue reading Leap Of Faith: Will Health Care Ministries Cover Your Costs?

Evolution of Eve | A Mother of a Birth Story [pt. 1]

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My daughter is a miracle. From conception to birth she battled to be born. Even now, as we gaze into each other’s eyes when she nuzzles and nurses, I’m amazed she is really, truly here.

(By Eve Hinson. Originally published Summer/Fall 2009)

Still, I can’t get enough of her and nibble her tender toes, cheeks and belly. Her skin is warm and sweet. I rub my face against her downy auburn hair and am thankful she’s alive. I’m relieved we both survived. Continue reading Evolution of Eve | A Mother of a Birth Story [pt. 1]

States Have Tried Versions Of ‘Skinny Repeal.’ It Didn’t Go Well.

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Betting that thin is in — and might be the only way forward — Senate Republicans are eyeing a “skinny repeal” that rolls back an unpopular portion of the federal health law. But experts warn that the idea has been tried before, and with little success.

Senators are reportedly considering a narrow bill that would eliminate the Affordable Care Act’s “individual mandate,” which assesses a tax on Americans who don’t have insurance, along with penalties for employers with 50 or more workers who fail to offer health coverage.

Details aren’t clear, but it appears that — at least initially — the rest of the 2010 health law would remain, including the rule that says insurers must cover people with preexisting medical problems.

“We need an outcome, and if a so-called skinny repeal is the first step, that’s a good first step,” said Sen. Thom Tillis (R-N.C.). Continue reading States Have Tried Versions Of ‘Skinny Repeal.’ It Didn’t Go Well.

How To Get Long-Term Care At Home Without Busting The Bank

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The vast majority of older adults receive long-term care at home, not in nursing homes. But few people plan for this expense.

Nor do they see long-term care insurance as a viable option — because it’s expensive and is often seen as protection against the cost of nursing home care.

That should change, some experts contend. If the long-term care insurance industry focused more on helping people cover home-based services, they argue, policies would be more affordable, and potentially appealing.

“Long-term care, for most people, is a home care problem,” said Bill Comfort, who owns Comfort Long Term Care, a brokerage based in St. Louis and Durham, N.C. Continue reading How To Get Long-Term Care At Home Without Busting The Bank