My Communications with The Mighty.com (This is a collection of emails – more to be written about this site.)

From: Eve Hinson <writefirstdaily@gmail.com>
Date: Thu, Mar 24, 2016 at 4:36 AM
Subject: Mental Illness/Sensory Disability submission: Chaos & The Quiet
To: community@themighty.com
Greetings,
Good morning. I’m submitting a piece I wrote about living with sensory overload issues that are related to PTSD, Functional Neurlogical Disorder (FNDHope.org has more info), and autism/aspergers.
Please find it included below with a link to the post on my QuirkyBirdWords.com blog.
Thank you in advance for your consideration and time.
Sincerely,
Eve Hinson
Submitted was Chaos & The Quiet

Hello Eve, 

I’m Sarah, the mental heath editor at The Mighty. It’s nice to meet you, and thanks for sharing this with us. Unfortunately we can’t publish every submission we receive, and this isn’t a format we usually publish on The Mighty, but it’s fantastic. I hope you’ll submit again.

Best,

Sarah


eveabaintro4/10/16
Hi,
Sorry, I sent a submission on accident that wasn’t ready to fly I realized. Here’s the updated submission for your consideration. I’ve included links to videos on youtube, and attached photos. Please let me know if this works … or if something in a different style is needed. I greatly appreciate your consideration.
Sincerely,
Eve Hinson
Related videos:
Carolyn Cooper speaks in Fresno – Founding Mother of UACF- Jan 2014, Each Mind Matters Training 
My story posted after attending Each Mind Matters Training
Mental Disability: From Burden to Badass
My body was a coffin after the onset of Psychogenic Non-epileptic Seizures*, a mental condition, in 2010. It was a living breathing container for a dead person walking.
Consciousness came with unending electric pain zapping through my limbs, back, head and left me exhausted and unable to do the basics of life — like get out of bed. All attempts at self-care needed the help of another person to support, carry or protect my head if I hit the ground to shake, rattle and roll. A slight breeze on my skin would be enough to trigger the hell.
At this point, time had zero meaning and amnesia masked my memories — including the birth of my daughter. She was 18-months-old when I triggered. I’m told I was in bed for the majority of two years and lost a lot of hair. Because my condition was considered a mental illness — stigma crept in and I absorbed it. I was bounced between neurologists and psychiatrists. None knew how to help me.
A neurologist told my partner (at that time) that if I just believed in my diagnosis it would go away. The cure to my mental illness was to believe I had a mental illness. I didn’t deny my diagnosis. After that, I thought perhaps I needed to believe it more and it was my fault for not believing it enough. What I wanted was a better quality of life. The experts told me my cure was the thoughts in my head.
When the reality hit I was unable to return to my career, care for my children, shave my own legs or walk without falling — and that I most likely would never be able to do those things again — I lost all my self-worth. I was no longer a breadwinner, active mother, or involved with any community events. What did I have to offer other than suck the life out of people who loved me? Regardless of what I was told, I felt like a burden. There was no room to deny that now I had to be cared for like a child too.
By 2014, I had made slow gradual improvement. I could walk without a cane, speak more clearly with intense focus and dress myself. I could even go out to a very well-planned coffee date with a friend — with the full knowledge it could last five minutes or an hour. Life outside depended on my ability to handle the sensory load of noise, light and vibrations in public.
In January of that year, my social worker at the local independence living center, approached me about applying for a workshop by Each Mind Matters: California’s Mental Health Movement organization to learn how to share my story.
At first, I was flabbergasted. She wanted me to do what? My social worker shared she thought I was exactly the right person for this type of training. My story needed to be heard to let others know they weren’t alone, recovery is possible and help break the stigma of living with a severe mental illness.
Wow. After so long feeling like a financial, emotional and soul-drain to the people around me, I could use this experience to help the community? I didn’t know if I could make two hours in a learning-environment much less two full days. Decided I couldn’t tell myself no out of fear of not being well enough to participate appropriately and applied. I’m so glad I did. Those two days changed my life and set the course of my future advocacy efforts. It was there I met Carolyn Cooper, a founder of United Children and Families Foundation (UACF), and listened as she shared about her son’s and her journey through his life and death.
Afterwards, I spoke with Cooper about her endurance and the life of her son. We talked awhile and she shared more about her efforts in the special needs education arena and I realized — this woman’s work has directly helped my children in their special needs placements. If I hadn’t met her, I’d never known how integral her work was to my children’s services in school.
When I asked how she did she survive the experiences of the life, lack mental health and special needs services for her son and then his death … She replied her son’s life had value and learned so much about mental health and special needs education. She also said, “You make it mean something.”
Make it mean something.
That arrow of truth and hope struck and struck my soul. Here was a woman who worked so hard during the life of her son and then continued on  — so no other mother would have to go through her experience — and became the founding mother of UACF. This now big organization was started with a small group of folks of parents and loved ones.  It was UACF, in 2014, who brought the Each Mind Matters training into town with the goal to create positive change through sharing stories.
Cooper made me feel positive and that I could make my life mean something after so many years of illness and bedrest. At that time it didn’t occur to me to attempt to follow in her footsteps of starting a non-profit. Far too lofty of a goal at my point of wellness then.
I did take sharing my story very serious because I had already felt the impact of Cooper’s work. I knew sharing about my illness  would make a difference out there to someone — regardless how uncomfortable it felt.
 After that training, I created a video about my story and posted it to Youtube. I have since obtained additional training through NAMI Fresno and have spoke to high school students, crisis intervention teams, EMTs, police officers and highway patrol — among others. Last year, II was compelled to break institutionalized stigma being promoted by a local company with their name 51Fifty Energy Drink and slogan to “Live the Madness.”
5150 is California’s Welfare and Institutions code for when a person, as a result of a mental health disorder, is a danger to others, themselves, or gravely disabled.
The efforts of #TheReal5150 social media campaign prompted California’s largest grocery retailer, Save Mart, to discontinue the product from being placed on their shelves. The decision was met with a media storm and lots of anger from the fans of the drink. Recently, the owner of the company has announced the choice to keep the name and slogan — but launch a campaign to reduce stigma of mental illness through “Race To End Stigma” campaign.
It’s my hope it’s a step in the right direction for more positive change in the community.
That campaign taught me that so much is needed to break the stigma still — and that mental conditions, autism, other neuro-related differences were incredibly misunderstood. That the voices of peers were greatly missing in this conversation. Many peers are still so trapped by mental illness stigma, it’s too dangerous for them to talk about it freely. Many peers on the spectrum, (Asperger’s myself) have been told they aren’t autistic enough or too autistic to be taken seriously with their voices of advocacy for inclusion and acceptance.
It’s time to change that. Last week I launched AmericanBadassAdvocates.org to promote and create peer-led initiatives for neurodiversity. It’s time to add our voice to the mix. Our loved ones have done well to support, find services and advocate for us. Now we need to stand up with them and speak too. Nothing about us without us.
And while I didn’t dream of creating a community business organization when I met Carolyn Cooper — I can now and have launched AmericanBadassAdvocates.org with the intent of making it a 501c3 with my co-founder and business operations guru, Rhonda Wirzberger.
It was hearing and meeting Carolyn Cooper that changed the direction of my life from burden to activist. My life has a purpose and it feels great. I live again and with purpose: making it mean something. Now that’s Badass.

TheMighty_logo_800x800
Mental Health Community <mentalhealth@themighty.com4/10/16
Hey Eve, 

Thanks for sending this over. 🙂 This works really well, and I’d love to publish it on The Mighty. Just to let you know, we do edit all posts for length, clarity and our editorial guidelines — I’m excited to get this on the site.

Thanks for being a badass.

Best,
Sarah

eveabaintro4/10/16 — Eve’s Reply

Wahooo, fabulous! Thank you. Please let me know if you need anything else.

Cheers!


 The Story Was Never Published.


eveabaintrofrom:Eve Hinson <writefirstdaily@gmail.com>to:Mental Health Community <mentalhealth@themighty.com>
date:Sun, Jan 15, 2017 at 8:02 AMsubject:Autistics Against Autism Speaks | A Civil Rights Movementmailed-by:gmail.com

Hi,
I’m Eve Hinson, Autistic Founder of AmericanBadassAdvocates.org. Our goal is peer-led initiatives for neurodiversity.
The past two years the focus has been on #TheReal5150 campaign to break institutionalized stigma of severe mental illness — specifically against the brand 51Fifty Energy Drink “Live the Madness.”
That social media protest campaign inspired and launched AmericanBadassAdvocates.org last year.
Now we’re joining the Autistic Civil Rights movement and (always the plan) #BoycottAutismSpeaks and seeking support in sharing facts and real Autistic voices.
Thank you in advance for your time and consideration.
Eve Hinson
*******************
Autistics Against Autism Speaks | A Civil Rights Movement
In 2005 Autism Speaks was founded to find a “cure” for Autism. The organization launched a massive wave of Fear Porn-styled advertising to raise an incredible amount of money in a very short amount of time.
#fact | Autism is a brain neurotype – not a disease. It can’t be cured.
#fact | The only “cure” for Autism is a genetic-marker test during pregnancy.  This would result in the same “cure” society has for Down Syndrome: Abortion.
#fact | The only other “cure” for Autism would be complete human extinction.
#fact | The largest portion of Autism Speaks donations were funneled into research. Only 4% went to supporting existing Autistic children and families. Autism Speaks, until October 2016, main goal was genocide.
This video is an attempt to more clearly portray and explain through authentic Autistic Voices the true history of our people in the shadow of the Autism Speaks machine.
Blog post:
Youtube video: https://youtu.be/YLJsuEqRCCw


Eve Hinson <writefirstdaily@gmail.com>
to: Mental Health Community <mentalhealth@themighty.com>
date: Sun, Jan 15, 2017 at 8:02 AM
subject: Autistics Against Autism Speaks | A Civil Rights Movement
mailed-by: gmail.com
Hi,
I’m Eve Hinson, Autistic Founder of AmericanBadassAdvocates.org. Our goal is peer-led initiatives for neurodiversity.
The past two years the focus has been on #TheReal5150 campaign to break institutionalized stigma of severe mental illness — specifically against the brand 51Fifty Energy Drink “Live the Madness.”
That social media protest campaign inspired and launched AmericanBadassAdvocates.org last year.
Now we’re joining the Autistic Civil Rights movement and (always the plan) #BoycottAutismSpeaks and seeking support in sharing facts and real Autistic voices.
Thank you in advance for your time and consideration.
Eve Hinson
*******************
Autistics Against Autism Speaks | A Civil Rights Movement
In 2005 Autism Speaks was founded to find a “cure” for Autism. The organization launched a massive wave of Fear Porn-styled advertising to raise an incredible amount of money in a very short amount of time.
#fact | Autism is a brain neurotype – not a disease. It can’t be cured.
#fact | The only “cure” for Autism is a genetic-marker test during pregnancy.  This would result in the same “cure” society has for Down Syndrome: Abortion.
#fact | The only other “cure” for Autism would be complete human extinction.
#fact | The largest portion of Autism Speaks donations were funneled into research. Only 4% went to supporting existing Autistic children and families. Autism Speaks, until October 2016, main goal was genocide.
This video is an attempt to more clearly portray and explain through authentic Autistic Voices the true history of our people in the shadow of the Autism Speaks machine.
Blog post:
Attachments area
Preview YouTube video Autistics Against Autism Speaks | A Civil Rights Movement | Ep. 1

Autistics Against Autism Speaks | A Civil Rights Movement | Ep. 1


m: Eve Hinson <writefirstdaily@gmail.com>
to: Mental Health Community <mentalhealth@themighty.com>
date: Mon, Apr 11, 2016 at 7:26 AM
subject: Update: 51Fifty/MoonShiners planning Save Mart protest
mailed-by: gmail.com
Hi,
 
Thought I’d share this interesting development. I did hear a rumor that Save Mart is considering restocking but not sure if it’s valid coming from the warehouse area or conjecture. Time will tell 🙂 

Still waiting…………….. #refusetobeignored

Anastasia Bettencourt Olson

United States

Apr 7, 2016 — So here we are. 51Fifty is moving forward with the Race To End Stigma Campaign. Everyone seems to be on the same page and getting along, right? Well then, my question is why has no one heard from Save Mart? Numerous posts, e-mails, calls, etc……….. and nothing. Not a peep. Hrmmmmmmmmmmmmmmmmmmmm, that doesn’t quite work for us here at the #Isupport51FIFTY Campaign. So this morning Tracey sent this e-mail:

Gentlemen and Ms. Miranda,

I’m writing to you again to see if you’ve changed your position on restoring 51Fifty to all Save Mart stores. You see, quite a bit has changed since my last email to you.

You’ve been given a chance to change your position, save face and support ending the “stigma” that claims to be the root of this entire campaign. A reversal of your decision at this point would be in your best interest.

As you can see per the attached photo and link to an article published by the Fresno Bee, Miss Eve Hinson, who originally started the campaign to remove product, is now supporting 51Fifty. That alone should prove to you that she no longer supports removing the product from your stores. It would seem to be quite the contradiction if she did.

As I stated in my previous emails to you, we’re not going away. WE refuse to be ignored. The petition to restore product has now reached 2118.

I’d greatly appreciate a response to this email not later than Monday. Should you choose to not respond, our next move will be to organize “Restore 51Fifty” protests with all 2118 people at all Save Mart stores throughout the Central Valley. Considering we’ve reached out to multiple Media outlets already, I can’t imagine that this is the image that you want to portray.

Looking forward to your response.

Sincerely,

Tracey Buck

We sincerely hope to hear back from Save Mart before the set deadline. However, we are ready to organize protests across the valley if we don’t. Please keep the push going! Please REFUSE TO BE IGNORED!


Rhonda Note on Email:
American Badass Advocates

Hello all, a quick notie from the co-founder of AmericanBadassAdvocates.org.There is some misreading of the aforementioned Fresno Bee article going on. My partner, Eve Hinson and I (Rhonda Jane Wirzberger-Thornton) support the newly announced campaign #RaceToEndStigma but we also support Save Mart’s decision to take a stand against stigma. We continue that support to this day. We encourage Carlos to launch the campaign, make it successful, show Save Mart that stigma is reduced, then approach Save Mart about once again carrying the product. “I am going to win this NASCAR race” doesn’t win an award, “I crossed the finish line first” gets a trophy. (Neither Eve Hinson nor I have signed this petition for the reasons given above) NOTE: Eve Hinson is misquoted in the above update.


Mental Health Community <mentalhealth@themighty.com>
to: Eve Hinson <writefirstdaily@gmail.com>
date: Mon, Apr 11, 2016 at 7:56 AM
subject: Re: Update: 51Fifty/MoonShiners planning Save Mart protest
mailed-by: themighty.com
signed-by: themighty-com.20150623.gappssmtp.com
Thanks for the update. 🙂

Best,

Sarah


from: Eve Hinson <writefirstdaily@gmail.com>
to: Mental Health Community <mentalhealth@themighty.com>
date: Tue, Apr 12, 2016 at 12:15 PM
subject: Might be of interest?
Hi Sarah,
The lash-back on Jake Lloyd has hit a button with me this morning. The stigma for mental illness with the stars is by far the most scathing. I don’t understand how people can flip from love to mockery like that. Anyhow, who ever speaks up for them? I think it’s time peers stand up for them. One thing we all know mental illness doesn’t discriminate based on popularity, social status, money, culture, race, religion or political affiliation. Total equal opportunist.
I often see stars putting themselves out there for mental illness to break the stigma. I really think it’s time for peers to help get their backs too.
Not sure if this would be of interest to you but wanted to share in case — and also if you knew of other advocates who might be interested in publicly supporting for compassion over judgement via social media.
Thank you very much.
Sincerely,
Eve Hinson
Mental Illness is not a Joke. Show #Compassion4JakeLloyd

Stigma can stop with you. Jake Lloyd suffers from Schizophrenia and complications of the illness have been spotlighted everywhere. The reactions are predictably cruel — the spirit of jokes horrendous and mean. It’s time to stop the mockery of this human’s crisis and suffering.

It’s heartbreaking how much more celebrities have to suffer when they have a mental disability and it’s symptoms and behaviors are judged in the world spotlight, made into jokes and they become dehumanized. The same people who were loved and excelled when they were well. What is wrong with society? Time to evolve.

This phenomenon happening with Jake Lloyd is stigma and it’s disgusting. Please show your compassion on social media and put a stop to this type of shaming. Be human online too.

Also, let others know with love and kindness they can do better and show #Compassion4JakeLloyd. He is worthy of it, appropriate treatment and privacy to heal.

When he gets home, someone please take him a casserole.

https://americanbadassadvocates.org/2016/04/12/mental-illness-is-not-a-joke-show-compassion4jakelloyd/


rom: Eve Hinson <writefirstdaily@gmail.com>
to: Mental Health Community <mentalhealth@themighty.com>
date: Fri, Sep 16, 2016 at 5:52 PM
subject: Clovis CA residents fight behavioral hospital
 Council described mentally ill and homeless as unwanted and residents cheered during planning commission meeting.

https://m.facebook.com/story.php?story_fbid=10153803968557823&substory_index=1&id=546742822

More on fresnobee.com.

Wanted to give a heads up. Comission delayed vote.

Thanks ,

Eve Hinson


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