Category Archives: AUTISTICS AGAINST AUTISM SPEAKS | A CIVIL RIGHTS MOVEMENT

#ActuallyAutistic Adults | Are We Being Silenced by a Community Business Organization for Profit?

Why are #ActuallyAutistic adults so successfully diminished and minimized by Autism Speaks?

This non-profit organization for Autistics is so powerful our they’ve trampled our #ActuallyAutistics voices and Civil Rights for over a decade now. The rottenness of this community business organization is common knowledge in the Autistic community, and yet it relays like a science-fiction plot to the general neurotypical world.

Why Does Autism Speaks have a Shit-Ton of Money and Power?

Autism Speaks reported a 10 million dollar year-over-year loss in donations for 2016, an 18% reduction. Yup, that’s a helluva lot of money and yet, only 18% loss. Still a shit-ton of money there folks. The loss was reported to changes in the business organization’s MSSNG research program, and a dip in funds raised at the Autism Walks.

And Again . . . no media mention of the #REDinstead campaign and #ActuallyAutistics. You know the folks protesting the fundraising walks and creating awareness of the Autistic Civil Rights Movement? No questions from mainstream media reporters on how the #ActuallyAutistic community feels about the change or the impact felt.

Finally A$ does something to modify their mission — albeit lip service — and #ActuallyAutistic advocates and their impact are still NOT included in the stories.

Of course, A$ never addressed the negative culture, community bashing and hellacious stigma they prompted on #ActuallyAutistic people this past decade with their war to eradicate Autism. Also, no notes to this being the same culture Autistics are still suffering, battling and protesting today.

Pffft, and you know there’s no mention of A$ groupies (converted neurotypical parents) either, that actively claim “Autism” culture as their own, force their version of it down Autistics throats and then bash us for not wanting a “cure.”

This prompts some questions . . . 

  • Do many non-profit organizations use their money and power to actively go against their target demographic, like Autism Speaks does to #ActuallyAutistic?
  • How does a non-profit become this mighty so quickly with fundraising and legislators?
  • Where’s the money coming from and where’s it going?
  • Who profits the most from A$ donations? Which companies/organizations are receiving A$ money?
  • Better yet, this question: How the fuck did this organization become so powerful to silence us all?

Ahhh, let’s go back to the founders – Bob and Suzanne Wright.

Bob Wright was a former NBC executive, president and CEO from 1986 to 2001, and chairman and CEO from 2001 until he retired in 2007. 

Prior to NBC, he held several posts at General Electric in the 1960s, 70s and 80s, and served as GE’s vice chairman until he retired from that role in 2008.

Suzanne Wright was his wife. Both were grandparents to an Autistic grandson.

The Wrights’ founded the Autism Speaks organization, within a year became experts on Autism, and then merged with Autism Coalition for Research and Education in 2005, National Alliance for Autism Research in 2006 and Cure Autism Now in 2007.

This here is an attempt to follow the money and the power of The Autistic Silencers. (Or at least start get a visual of what #ActuallyAutistic are up against in their fight to be heard.)

Defining The Autistic Silencers as businesses/organizations/money/power connected to Autism Speaks that are complicit in silencing our #ActuallyAutistic voices. This is the beginning of this project– and the list below is not in anyway complete. More will be added as known.


#ActuallyAutistic Activists VS. The Autistic Silencers 

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Starting with Bob Wright, immediately Autism Speaks is different than other grass-roots organizations. A$ was co-founded by a mighty powerful man in the media industry.

His wife, Suzanne Wright, and his views defined America’s understanding of Autism. Their dark-marketing of the invented Autistic apocalypse created a cult-like following of neurotypical parents that demand their views, beliefs, goals and identity were more important than the #ActuallyAutistic community.

These parents identified with the mission of battling/defeating Autism, identifying themselves as “Autism Families,” and demanding that their invented version of Autistic culture was correct. Even creating a fashion, beauty and lifestyle Autism market geared to non-Autistic parents of Autistic kids.

So here is the wall-of-power related to Bob Wright and A$ (so far) potentially blocking #ActuallyAutistic voices: 

This list is just the start. So far these are companies have direct connections to Bob Wright. These are the voices we’re trying to be louder than — at the very least. Are they suppressing our #ActuallyAutistic voices too? Who makes the most profit from our silence?


Here are a few . . .  this page is work in progress, but starting to see what we’re up against in mainstream media?

 


Partnerships

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Buddies

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trump

 

“The president made a promise to the late wife of his friend Bob Wright that he would light up the White House in blue if he won the November election, White House press secretary Sean Spicer said.” – via The Hill


A$ Sponsors

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A$ PARTNERS OF NOTE

  • Fedex logo
  • Toys R Us logo
  • Activision logo
  • French's logo
  • Gap logo
  • Lindt logo
  • Toyota logo
  • Vivint logo

 

 

 

 

 

 

 

 

 

 

 

 

 

Evolution of Eve | I’m Autistic and Proud (poetry/prose)

By Eve Hinson (almost Reiland)

I’m Autistic and proud

Not afraid to talk about it outloud

And why would I fear sharing that I like me?
All of me, especially this neurodiverse brain of me?

I’m savant with creativity, alive with visual language,
forget the super highway — this brain is an information constellation,
technical ancestor, internet goddess, pattern finder and seeker
keyboard warrior and new media memory keeper.

I don’t give a fuck about sports or square root,
but let’s talk HTML, Social media, incredible hair and . . .
Hot damn, just not politics.

At least not until we find the concentric overlap
of neurotypical and autistic, and define
the shared spectrum of communication
Before we debate this kind of shit.

I’m Autistic and proud

Continue reading Evolution of Eve | I’m Autistic and Proud (poetry/prose)

Why Is It Necessary To Intervene With The Natural Course Of Being Autistic?

The Bullshit Fairy

Yes, ALL ABA. I’m writing this post because of the recent comments on my Facebook page’s posts about ABA. So many parents of autistic children, aren’t willing to have a conversation with #ActuallyAutistic folk about ABA. In fact they are incredibly quick to be defensive in declaring, “but our therapy is different!”

But is it? Is it really?

We state that ABA is equivalent to Dog Training for children, and the parents will say but their child isn’t told to sit, stay or beg for food.

We tell them about the physical abuse, and the parents say, but there are no physical punishments. But since when is abuse only actual physical harm? What about the threat of physical harm or discomfort? What about what seems ok to a non-autistic person, such as a hug, can be a sensory nightmare for an autistic child? Is that ok?

We tell them about…

View original post 304 more words

ASAN Releases Easy Read Toolkit on Getting Through to your Elected Officials

asan

In February, we announced the release of our plain language toolkit, “They Work For Us: A Self-Advocate’s Guide to Getting Through to your Elected Officials.” Now, we’re pleased to share our newly-created Easy Read version of this toolkit.

The Easy Read Edition uses pictures along with text, and has more white space. It’s written in easy-to-understand language and is screenreader-friendly. This version of the toolkit is divided into 9 parts, including “Who has the power to make laws?”, “How can I talk to my elected officials?”, and “All about voting”. This Easy Read toolkit covers:

  • Who our elected officials are
  • How to contact your elected officials
  • Strategies, scripts, and templates to help you effectively communicate with your elected officials
  • How to use social media for political advocacy
  • The basics of voting: why, how, and when

They Work For Us: Easy Read Edition is the latest entry in ASAN’s ongoing series of toolkits covering the basics of civic engagement. These toolkits aim to help people with disabilities become active participants in our democracy. We encourage you to share this toolkit widely so that we can give as many self-advocates as possible the tools we need to tell lawmakers: Nothing about us without us!

 

L’Oreal, Kiehls, Urban Decay and the Autistic Community – YouTube

Here’s some reasons and my extreme rant against the way L’Oreal and their subsidiaries are TONE DEAF towards the autistic community. How can you support autism speaks and ignore an actual autistic person? How can you be insensitive to those with sensory problems or mobility problems by creating an uneven playing field?

Autism Speaks: How Long Does It Take to Look into It? | NOS Magazine

Team pages for the Autism Speaks Walks are pretty standard fare. You can go to each page to learn a little bit about a team who is pledging to raise money and donate to them yourself. A quick searc…

Source: Autism Speaks: How Long Does It Take to Look into It? | NOS Magazine

Shine a Light on Autism with Rosco Color Filters! | Blog | Autism Speaks

The first question we wanted to ask was – why blue? What does the color blue have to do with the autism spectrum? The answer is that Autism Spectrum Disorders are almost 5 times more common among boys (1 in 54) than among girls (1 in 252). So, the color blue represents the boys diagnosed with autism.

Source: Shine a Light on Autism with Rosco Color Filters! | Blog | Autism Speaks